• contactus@rdif.org.in

About Us

Rare Diseases India Foundation (RDIF)

Rare Diseases India Foundation (RDIF) is a non-profit patient advocacy organization registered in 2019, committed to supporting individuals with rare diseases in India. Recognizing the need for better awareness, education, diagnosis, treatment, and management of rare diseases, RDIF was formed to serve as a support system for patients and families.


RDIF addresses gaps such as limited awareness among medical professionals, lack of reliable treatment information, insufficient government policies or insurance schemes, and the scarcity of treating specialists in India. By uniting these efforts, RDIF aims to make a lasting impact on the rare disease community across the country.



RDIF Logo

OUR Mission

  • 1) To increase widespread awareness of rare diseases and ways for their early detection & management and ensure education in related issues such as newborn screening, prenatal diagnostics and genetic counseling among all relevant stakeholders.
  • 2) To advocate for stronger policy support, funding and interventions necessary for rare disease management in the country
  • 3) To help improve the standards of care for patients – including improved diagnostics and treatment in India.
  • 4) To collaborate with important stakeholders that can strengthen the cause of rare diseases.


OUR Vision

To enable timely diagnosis, proper treatment, and management of rare diseases for all patients and ensure required support for affected patients and families.