significant step


Awareness & Education
Emotional Support
Rare Disease Advocacy
Rare Diseases India Foundation (RDIF)
Rare Diseases India Foundation (RDIF) is a Non-Profit patient advocacy organization dedicated to individuals with rare diseases. Registered in 2019, we aim to bridge the gap in awareness, diagnosis, treatment, and management of rare diseases across India. Our foundation was born out of the growing need to address the challenges faced by patients and their families who are affected by rare diseases.

Rare diseases are not as rare as you may think!
A rare disease is a medical condition that affects …
A Rare disease is a medical condition that affects a small percentage of the population, typically fewer than 1 in 2,000 people. These conditions are often complex, chronic, and can be life-threatening. Rare diseases are frequently genetic and can impact people from birth or develop later in life. Due to their rarity, they often lack sufficient research and treatment options.

Vision

Mission

Objective
We have to alert about to build extra awareness.
Non-Profit patient advocacy Organization
Rare Diseases India Foundation (RDIF) is a Non-Profit patient advocacy Organization dedicated to individuals with rare diseases, registered in 2019 in India. Acknowledging a felt need for increasing awareness, education, diagnosis, treatment, and management of rare diseases in the country, we have formed this foundation with an ultimate goal to work for them.

Hunter
Hunter syndrome is a rare genetic disorder that affects the body's ability to break down certain sugars, leading to buildup in tissues and organs.
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Duchenne Muscular Dystrophy
(DMD) is a genetic disorder which by progressive muscle degeneration and weakness, caused by the absence of dystrophin, a protein that helps keep muscles intact.
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Gaucher
Gaucher syndrome is a genetic disorder where fatty substances accumulate in certain organs, particularly the spleen and liver leading...
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Lysosomal Storage Diseases
LSD refers to a group of inherited metabolic disorders caused by enzyme deficiencies within lysosomes, leading to the accumulation of toxic substances in cells.
Read morePurpose of the organization

RD Awareness

Supportive Therapies

Medical Insurance

National Policy

Absence of patient support
