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RD Awareness
Rare diseases affect millions globally, but due to their uncommon nature, they...
Supportive Therapies
There are approved supportive therapies, such as enzyme replacement therapies...
Medical Insurance
There are no existing government schemes or medical insurance policies...
National Policy
India currently lacks a comprehensive National Policy for the Treatment of Rare Diseases.
Absence of patient support
There is no formal patient support system in place to assist the families of those...
Handful of specialists
In India, there are only a handful of specialists and healthcare providers with expertise in treating rare diseases...