National Policy for the Treatment of Rare Diseases
India currently lacks a comprehensive National Policy for the Treatment of Rare Diseases. This absence leaves patients with rare conditions without structured support, making access to treatments, diagnostics, and necessary care more difficult.
The lack of a national framework further complicates the ability to address the unique challenges posed by rare diseases, underscoring the need for a dedicated policy to ensure equitable access to treatment and financial support for those affected.
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