About – Rare Diseases India Foundation, RDIF

About us

The Rare Diseases India Foundation (RDIF) is a dedicated non-profit organization advocating for the needs and rights of individuals affected by rare diseases in India. Established with the mission to bridge the gaps in healthcare accessibility and support for rare disease patients, RDIF serves as a crucial support network and resource hub for patients, families, healthcare providers, and researchers. We strive to improve the lives of those living with rare diseases through awareness, advocacy, and access to quality care and treatment options.

Vision:
Empowering individuals with rare diseases in India to live healthier, fuller lives through awareness, support, and accessible care.

Mission:
RDIF’s mission is to be a dedicated and compassionate advocate for the rare disease community in India, ensuring equal access to healthcare resources, promoting early diagnosis, and fostering a supportive environment for patients and their families.

Objectives:
Raise Awareness: To promote rare diseases as a public health priority and increase awareness among healthcare providers, policymakers, and the general public.
Policy Advocacy: To contribute to the development and implementation of public policies, such as the Rare Disease Policy and Orphan Drug Policy, that support rare disease patients and their families.
Global Collaboration: To connect with national and international organizations like NORD, EURORDIS, and RDI, facilitating joint efforts for better research, resources, and patient support.
Enhanced Diagnosis and Treatment: To advocate for early diagnosis, treatment access, and new-born screening by fostering public-private partnerships.
Support Clinical Research and Drug Development: To facilitate and promote clinical trials, research initiatives, and the development of orphan drugs to improve treatment options for rare disease patients.